Dear HAE Patient and Members of Your Household,

The US HAEA Angioedema Center at UC San Diego and the US Hereditary Angioedema Association (HAEA) encourage you to participate in an important study on COVID-19 (coronavirus disease 2019). Please complete the survey whether or not you have been infected with the virus. The information you provide will help us understand whether the virus affects people with HAE differently than people who do not have HAE. We will share the findings with the HAEA and scientific communities when the study is concluded.

Participation in this study is voluntary and you may withdraw at any time. Your answers are anonymous, and you cannot be connected to the information you provide. Completing the questionnaire will take approximately 10 minutes.

To understand the risks posed by COVID-19 for people with HAE, we need to obtain information about everyone in your household. It is important that a survey be completed for every member of your household whether they have HAE or not. Individual household members can fill out their own survey or have someone else in the household complete a survey on their behalf. Any children in your household (less than 18 years of age) must have their survey completed by an adult.

If you have any questions you may contact either: Christine Selva at the US HAEA ( or Dr. Tukisa Smith at UC San Diego (

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